On the occasion of marking the “Day of Rare Diseases 2019″, the National Alliance for Rare Diseases of the Republic of Macedonia. Macedonia (NARBM) organizes two interesting events, within the framework of the project “Systematic Solutions for Patients with Rare Diseases”, financed by the European Union.
The main goal of this project is to create and adopt system solutions for patients with rare diseases through appropriate legal solutions, national plan and functional institutional support.
28.2.
Agenda:
14.30 – 14.45 Press-conference
14.45 – 15.30 Discussion
2.3.
The following agenda is foreseen:
11.00 – 11.10 Welcome – Rebecca Jankovska Ristovski
11.10 – 11.25 “Juggling – hardly anyone can!” – Christian Benito, children’s animator and juggler
11.25 – 11.40 “Bear Hospital” – EMSA
11.40 – 12.00 Friendship with rare animals – Vojo Ivanov
12.00 – 12.15 Music Corner – Drum Talks
12.15 – 12.30 Coffee break for sandwiches and juices
12.30 – 12.40 Address by Mila Carova, Minister of Labor and Social Policy
12.40 – 13.00 We are learning poems and coloring boards for rare school – Foreign Language School LION, Skopje